so it'll stop working? Before starting Topamax treatment, tell your doctor if you follow a ketogenic diet. Rarely, Topamax may cause mood changes. +0 GR gr07 24 April 2013 I'm on it for migraines. It can lead to blindness if its not treated. Be sure to talk with your doctor and pharmacist about all of the drugs you take before starting Topamax. Examples of mood changes you may notice while taking Topamax include: Tell your doctor right away if you have mood changes while taking Topamax. These symptoms could be life threatening and require immediate medical care. When its time for you to stop taking Topamax, your doctor will lower your dosage slowly over time. Mad that none of the doctors picked up on it. what were you taking it for if you don't mind me asking? Talk with your doctor if you experience cognitive side effects while taking Topamax. Your side effect notes can include things such as: Keeping notes and sharing them with your doctor will help your doctor learn more about how Topamax affects you. Which can be very dangerous and just plain weird. Call 911 or the local emergency number, or text TALK to 741741 to communicate with a trained crisis counselor. Below are a few of the more common side effects reported by people who took Topamax in studies. For me it stopped controlling my headaches after about 9 months. However, if the side effects last longer than that, bother you, or become severe, be sure to talk with your doctor or pharmacist. Cookie Notice Everything tastes sweet. These were rare in clinical trials. Although the sense of carbonation when drinking with a straw was not as intense as it was prior to topiramate initiation, she noticed considerable improvement; the straw enhanced the carbonation taste sensation enough to make some carbonated beverages palatable.. Chandrashekar J, Yarmolinsky D, von Buchholtz L et al. Side effects in clinical trials were slightly different depending on whether people used the drug to treat seizures or to prevent migraine headaches. Below we provide information about Topamax and pregnancy and breastfeeding. Debra Rose Wilson, Ph.D., MSN, R.N., IBCLC, AHN-BC, CHT, problems with sleep, such as sleepiness or, speech problems, such as having trouble thinking of the right words to say, eye side effects, such as sudden vision changes*, severe, negative changes in memory or mood, high level of ammonia in the blood, which can cause, trouble with memory, concentration, or thinking clearly, Not in the United States? throat irritation. Carbonation dysgeusia after topiramate initiation has been reported by patients taking the medication but is not well identified in the literature. Here we describe a case of carbonation dysgeusia potentially related to the initiation and continued use of topiramate following a generalized seizure. However, if your symptoms are serious and you think youre having a medical emergency, immediately call 911 or your local emergency number. This includes conditions such as asthma and chronic obstructive pulmonary disease (COPD). Note: After the Food and Drug Administration (FDA) approves a drug, it tracks side effects of the medication. However, it isnt known how often this side effect may have occurred in clinical trials. I recently started taking topamax (topiramate) , soda and chocolate taste funny . In most cases, these side effects should be temporary. Never disregard or delay professional medical advice in person because of anything on HealthTap. Dysgeusia can be caused by many different factors, including infection, some medications and vitamin deficiencies. Topamax can cause a high level of acid in the blood. The term carbonation dysgeusia is used to describe distortions of carbonation taste quality leading to diminished or complete elimination of the pungency or prickly sensation experienced on imbibing carbonated beverages.8 Other cases of topiramate-induced carbonation dysgeusia have been widely mentioned in various Internet patient forums.9,10 Although topiramate-induced dysgeusia has been reported in numerous randomized controlled trials, most of the trial reports did not define the specific manifestation of dysgeusia.11-13 Furthermore, our PubMed search, conducted without date limits using the terms topiramate and carbonation dysgeusia or drug-induced taste perversion, identified no previous reports describing this reaction in detail. The drug comes as tablets that you swallow and as sprinkle capsules. Liver problems. Topiramate was started at a dosage of 25 mg by mouth twice daily and after 3 weeks titrated to a dosage of 100 mg by mouth twice daily for maintenance therapy. If you develop serious side effects while taking Topamax, call your doctor right away. Mild side effects that have been reported with Topamax include: burning or numbness in your hands and feet appetite loss speech problems fatigue dizziness * sleepiness nervousness memory. However, if the side effects last longer than that, bother you, or become severe, be sure to talk with your doctor or pharmacist. This article is published and distributed under the terms of the Oxford University Press, Standard Journals Publication Model (. But these side effects werent common in studies of the drug. However, its not clear whether this side effect occurred in clinical trials. Case assessment using the adverse drug reaction probability scale of Naranjo et al15 indicated a probable relationship between topiramate use and carbonation-perception loss (ie, a score of 5). Abnormal vision, double vision, and blurred vision were common in studies of the drug. Your doctor can help determine whether treatment with Topamax is safe for you if you have liver problems. Theyll likely give you tests to make sure you arent having severe eye problems. Tell your doctor if you have lung problems before starting Topamax. By rejecting non-essential cookies, Reddit may still use certain cookies to ensure the proper functionality of our platform. The tablet may taste bitter if it is held in the mouth or chewed. Its also important to know that suddenly stopping Topamax could cause or worsen seizures. Talk with your doctor about your health history before you take Topamax. What I learned and what the Dr. Reccomended was take B vitamins every day. For a list of side effects that were more common for each of these uses, see the More common side effects section above. Thanks. I'm on topamax (topiramate) for mood swings it makes dr pepper taste funny i hate topamax (topiramate) imma tell my dr will i ever get my taste back if so and when. Reddit and its partners use cookies and similar technologies to provide you with a better experience. Hello doctor, I am on topamax (topiramate) and i've lost between 5-10 pounds in just 2 weeks is this healthy? Keep reading to learn about the common, mild, and serious side effects of Topamax and ways to deal with them. Topamax (topiramate) tablets, for oral use; Topamax (topiramate capsules) sprinkle capsules, for oral use. These side effects are described above. After you stop taking Topamax, the symptoms you were taking it for may return. They can help you figure out if youre having other mood changes that could cause these side effects. * This side effect can affect your ability to drive or safely operate machinery. The drug can cause side effects such as sleepiness or diarrhea in a breastfed child. Following a ketogenic (keto) diet. It is difficult to ascertain exactly why use of a straw may enhance carbonation perception in the mouth. Having reduced BMD could indicate that you have weakened bones. 1 more week and I'm finished. Talk with your doctor if youre concerned about your weight while taking Topamax. Following a brief loss of consciousness, she was brought to the emergency department by ambulance, and levetiracetam was initiated. Highlights of prescribing informationTopamax, A method for estimating the probability of adverse drug reactions, Topiramate in the treatment of partial and generalized epilepsy, Topiramate as an inhibitor of carbonic anhydrase isoenzymes, Carbonic anhydraseIV mediates the fizz of carbonated beverages, Side effects of acetazolamide: the champagne blues, Altered taste secondary to acetazolamide therapy, Energy and nutrient consumption of patients with dysgeusia, The effect of different methods of drinking a carbonated beverage on the pH of dental plaque: an in vivo study, Preventive effects of zinc sulfate on taste alterations in patients under irradiation for head and neck cancers: a randomized placebo-controlled trial. These articles might help: Disclaimer: Medical News Today has made every effort to make certain that all information is factually correct, comprehensive, and up to date. If youve had an allergic reaction to Topamax or any of its ingredients, you should not take Topamax. No matter the type of carbonated beverage, each one tasted flat to her since starting topiramate therapy. This side effect was somewhat common in clinical trials. The taste of food/drink however will remain the same the entire time you are on Topamax no matter what the dose. Below are answers to a few frequently asked questions about Topamaxs side effects. Examples include hair. 18 You can also see Topamaxs prescribing information or talk with your doctor or pharmacist. Linde et al11 noted a significant difference in taste disturbance adverse effects with topiramate vs placebo use in a meta-analysis of 9 trials involving a total of 1,737 participants. (2022). The brain fog was really bad at first. This may make some side effects more likely. You should not take Topamax if youve ever had an allergic reaction to Topamax or any of its ingredients. Depression or suicidal thoughts. everything tastes wrong, kind of like metal. More common side effects in people taking Topamax for migraine include: More common side effects in people taking Topamax for epilepsy include: Read on to learn about other mild and severe side effects that can happen with Topamax. Uses. Everything tastes sweet. Topamax can increase your risk of depression and suicidal thoughts or actions. What are the more common side effects of Topamax? Understand how melatonin and alcohol interact and how best to take melatonin to avoid negative side effects. Its possible to have weight loss from taking Topamax. You should always consult your doctor or another healthcare professional before taking any medication. Its not likely. Is that a side effect? Learn more. The sprinkle capsules can be swallowed whole or opened and poured onto food. For example, Topamax may cause eye side effects,* such as glaucoma. Lowered BMD could mean your bones are weakened. Examples include: If you have more questions about your risk of certain side effects from Topamax, talk with your doctor or pharmacist. The patient reported good adherence to the medication, missing less than 1 dose per month. So I've been on Topamax since around September and I've only lost like 3 lbs unfortunately lol. Topamax can cause shifts or changes in mood, including suicidal thoughts. Maheswaran T, Abikshyeet P, Sitra G, Gokulanathan S, Vaithiyanadane V, Jeelani S. Linde M, Mulleners WM, Chronicle EP, McCrory DC. High blood levels of ammonia (a waste product made by your body), which may cause swelling in your brain. I'm new to this pill and started taking it on Monday and have already been seeing side effects (lethargy, confusion, slowness) etc which I expected to happen but I started to notice today that carbonated drinks didn't feel fizzy and felt flat on my tongue and tasted different? Stay with the person until professional help arrives. Topamax is also commonly used to prevent migraine headaches in adults. Last medically reviewed on October 24, 2022. UPDATE: OMFG! She was also experiencing mild hand and feet paresthesia, which are commonly reported adverse effects of the medication.14 Bloodwork performed 10 months after topiramate initiation indicated that all values were within normal limits, with the exception of a low alkaline phosphatase (ALP) level (38 U/L [reference range, 50-136 U/L] and low creatinine concentration (0.7 mg/dL [reference range, 0.8-1.3 mg/dL]; neither low value was deemed concerning. And its not likely to cause liver problems unless youre also taking other drugs that can harm your liver. Perhaps with a straw the carbonated beverage is more concentrated on the tongue, where taste is perceived. If you have questions about Topamax and hair loss, talk with your doctor or pharmacist. Make sure to call your doctor right away if you have symptoms that are severe or bother you. The authors have declared no potential conflicts of interest. Good if you want to lose weight. I've been on Topamax for two months and I still can't stand to smell food, or taste what I eat or drink. Its possible. * To learn more about this side effect, see the Side effects explained section below. a common cold. Like other drugs, Topamax can cause side effects. Do not break, crush, or chew it. I had a few side effects to start with like tingling fingers, face and heels but that was bearable, and of course the weight loss which is an added bonus, but . Or they may suggest you wean off Topamax and try a different treatment for your condition. Dysgeusia is a medical condition defined as an alteration of the sense of taste.1 Certain medications can lead to dysgeusia through various mechanisms of action involving chemosensory pathways, such as taste, smell, and salivation.2 The majority of cases of taste dysfunction due to medication use cited in the literature involved hypogeusia (partially impaired sense of taste) or the more general dysgeusia.3 Dysgeusia has been reported with use of antibiotics (eg, clindamycin, metronidazole, fluoroquinolones), neurologic medications (eg, central nervous system stimulants, muscle relaxants), and psychotropics (eg, tricyclic antidepressants, anxiolytics, mood stabilizers) as well as antihistamines, antineoplastics, smoking cessation aids, and antifungals, among others.4, Metallic taste following medication administration is a commonly reported medication-induced dysgeusia. Swallow the food mixture right away without chewing. Topamax may not be right for you if you have certain medical conditions or other factors that affect your health. In rare cases, Topamax can cause metabolic acidosis (too much acid in your blood). Talk with your doctor to learn if Topamax is right for you. Through sensory nerves, the receptors communicate information about tastes to the brain. In clinical studies, some people had fewer headaches after 4 weeks of treatment. This registry helps healthcare professionals collect information about the safety of medications such as Topamax during pregnancy. Scan this QR code to download the app now. Then, you can share this information with your doctor. Angiotensin-converting enzyme inhibitors, especially captopril, are among the drugs most commonly associated with taste disturbances, with strongly metallic, bitter, or sweet tastes having been reported.6. Taking Melatonin: Can You Mix Melatonin and Alcohol? They are a BIG help and got my hair growing back. Yes, Topamax may cause sexual side effects, such as decreased sex drive. sorry but the topamax is totally working and it is worth it!! Carbonation dysgeusia as a result of topiramate therapy is not well identified in the literature but has been reported by patients in online chat forums.7 More frequently identified in the literature as causing carbonation taste alterations is acetazolamide, a carbonic anhydrase inhibitor. If your symptoms seem life threatening, call 911 or your local emergency number immediately. I must be the only one with this crazy list, so I thought I would share! Be sure to talk with your doctor about your health history before you take Topamax. Usually: Weight loss is a common (usually desired) side effect from med, can cause strange sensations, sometimes you have to decrease dose or increase more slowly, but if not intolerable, would try to stick it out at least 2 weeks and symptoms generally resolve. I secretly thought I had covid because one of the symptoms is your taste buds going crazy. For more information about this side effect, see Side effect specifics below. Talk with your doctor about the best way to feed your child if youre taking Topamax. For a general overview of the drug, including details about its uses, see this article. In the heart of nature, quiet, hiking trail at the foot of the chalet. The 988 Suicide and Crisis Lifeline is available 24 hours a day at 988. You may remove weapons or substances that can cause harm if you can do so safely. For me it stopped controlling my headaches after about 9 months. South-facing chalet in the municipality of Villard sur Doron. If you or someone you know is in crisis and considering suicide or self-harm, please seek support: If youre calling on behalf of someone else, stay with them until help arrives. 2023 Healthline Media LLC. This list doesnt include all possible mild side effects of the drug. dry mouth. Common side effects of Topamax include: anxiety, ataxia, confusion, diarrhea, diplopia, dizziness, drowsiness . 6. Post discussions, articles, and questions about uses, side effects, experiences, and any advances that may happen with this drug. I will be building up to eventually be at 100 mg twice a day will this side effect go away? Possibly. ? Does Topamax cause long-term side effects or permanent side effects? A 39-year-old Caucasian woman with longstanding epilepsy was initiated on topiramate therapy after experiencing a generalized seizure (she reported not taking any antiepileptic medication for years). It is growing back. Your doctor can talk with you about the risks and benefits of taking Topamax while breastfeeding. Get prescriptions or refills through a video chat, if the doctor feels the prescriptions are medically appropriate. Why does the taste of topamax (topiramate) stay in my mouth and how can I get it out? They may prescribe a drug other than Topamax for you. And do not stop using Topamax unless your doctor recommends it. They can suggest ways to maintain a weight thats healthy for you. Youll get first-hand stories from people living with this condition as well as tips for managing symptoms. It may sometimes cause side effects, especially if you misuse it. Oxford University Press is a department of the University of Oxford. For example, the following side effects were more likely to happen with higher doses (200 mg) of Topamax (compared with 25 mg or 50 mg, for example): For details about side effects in studies, you can see Topamaxs prescribing information. A systematic review of placebo-controlled trials of topiramate: how useful is a multiple-indications review for evaluating the adverse events of an antiepileptic drug? Following a ketogenic (keto) diet can increase acid levels in your blood. Aswini YB, Tangade PS, Ankola AV et al. All rights reserved. However, the drug can also cause some serious side effects which may require treatment. I want real experience please not someone posting side effects to the medicine as I've read those already. I will have a definite problem if any of my hair falls out - I absolutely adore my hair i spend hours fixing it in the morning! Forgetting stuff at the grocery store, where I put my keys, stuff like that. Kidney problems may increase the level of acid in your blood. However, compared to adults, children taking Topamax may be more likely to have certain side effects, including: Its important to keep an eye on your child in hot weather. It may not be safe to take Topamax while pregnant. Your doctor can help determine whether treatment with Topamax is safe for you. Learn the causes, treatments, and remedies for this type of headache. Your doctor can help determine whether treatment with Topamax is safe for you. .it is the topamax. Dysgeusia is a taste disorder. If this condition isnt treated, it can lead to osteoporosis. I am currently almost off Topamax now. I've been on Topamax for two months and I still can't stand to smell food, or taste what I eat or drink. But. For more information, please see our Still looking for answers? Its important not to change your dosage of Topamax without first talking with your doctor. Although topiramate has multiple mechanisms of action, its carbonic anhydrase inhibitory effects are similar to those of acetazolamide.17.
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